Snapshot of knowledge and stigma toward mental health disorders and treatment in Spain

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Snapshot of knowledge and stigma toward mental health disorders and treatment in Spain

1 Introduction

Mental disorders present ongoing challenges to individuals, families, and societies worldwide. They have a significant impact on quality of life and have garnered attention from researchers, clinicians, and policymakers. The World Health Organization estimates that in 2019, 970 million people, or 1 in every 8 individuals, were living with a mental disorder, with depression and anxiety being among the most prevalent (Auerbach et al., 2018). This emphasizes the need to understand the prevalence, treatment, and societal perceptions surrounding mental health. Studies conducted globally consistently indicate the widespread nature of mental disorders, with the Global Burden of Diseases Study reporting a 48.1% increase in prevalence between 1990 and 2019 (GBD, 2019). A recent study in Spain found a prevalence rate of 13.8% for mental disorders (Maestre-Miquel et al., 2021). Furthermore, disability arising from mental health disorders represents another pivotal dimension to be taken into account. In 2016, mental health disorders accounted for the loss of over 160 million DALYs (Disability-Adjusted Life Years) (Rehm and Shield, 2019). Mental health disorders have also been associated with decreased life expectancy and a deterioration in the quality of life of family members (Harris and Barraclough, 1998; Dey et al., 2012; Roerecke and Rehm, 2014).

Given the burden of mental health disorders, research on risk and protective factors has expanded. Understanding these factors is crucial for comprehending the development, course, and treatment of mental disorders. Various studies highlight the influence of biological, psychological, social, and environmental dimensions on mental health disorders (Hettema et al., 2001; Korkeila et al., 2005; Schiele and Domschke, 2018; Arango et al., 2021). The complexity of mental disorders is reflected in the interplay of these factors. Biological factors, such as genetics and neurochemical imbalances, interact with psychological and social factors, while environmental factors, such as socioeconomic status and exposure to adversity, further contribute to the complexity (Stilo and Murray, 2019; Ortega et al., 2022). The social and environmental dimensions of mental health disorders encompass the beliefs and perceptions held by individuals within a population regarding mental disorders, which in turn influence the developmental trajectory, prognosis, and treatment options available for individuals affected by such disorders. Recognizing this complexity allows healthcare providers to adopt a holistic approach to address mental health, leading to more comprehensive and personalized interventions. By identifying and targeting modifiable risk factors, interventions can be designed to reduce the likelihood of mental disorders.

Understanding mental disorders, along with their causes and risk factors, is essential for combating the stigma associated with mental health (Klin and Lemish, 2008). Mental disorders are treatable and preventable, yet help-seeking is often hindered by stigmatizing attitudes toward mental illness, individuals who suffer from them, and seeking professional help (Schnyder et al., 2018). Stigma toward mental illness and mental health services has been associated with less active help-seeking, and stigma toward psychological and pharmacological treatment can affect therapeutic efficacy and medication adherence (Barnet et al., 2006; Castaldelli-Maia et al., 2011; Nersessova et al., 2019).

Past research in Spain indicates the presence of stigma toward mental illnesses and those who suffer from them. Some studies reveal that the majority of participants perceived individuals with mental health conditions as unpredictable, dangerous, and aggressive (García-Galindo et al., 2012; Ruiz et al., 2012; Mogollón-Rodríguez et al., 2014; Lahera et al., 2019; Zamorano et al., 2023) while other studies reflect the common belief that people with mental illnesses are considered incapable and less responsible, lacking personal autonomy, and facing limitations in the workplace (Aznar-Lou et al., 2016; Lahera et al., 2019). Additionally, there are mixed findings regarding the treatment of mental illnesses, with some indicating that the Spanish population perceived them as less useful due to viewing mental illnesses as chronic conditions (Muñoz et al., 2009; Ruiz et al., 2012), while others showcase the belief in the effectiveness of psychological and psychiatric treatments (Ruiz et al., 2012; Lahera et al., 2019). Addressing the beliefs and perceptions of the population toward mental disorders and their treatment is crucial to tackle stigma, as it greatly impacts self-help seeking and mental health treatment (Lahera et al., 2019).

The current study aims to explore the knowledge and perceptions of the Spanish population toward mental disorders, individuals who suffer them and the treatment of these illnesses. We also aim to assess changes in mental health stigma over time and examine how perceptions and beliefs vary across sociodemographic variables (age, sex, and educational level). However, we will not achieve this objective directly since this study is not longitudinal. Instead, we plan to accomplish it by comparing our results with those of previous studies.

2 Materials and methods

An expert panel consisting of three highly esteemed psychiatrists reached a consensus on drafting a questionnaire to achieve the objectives of this study. The process of developing this questionnaire was as follows: the experts agreed on the relevant aspects of mental illness on which they wanted to gather the opinions of the Spanish population. These aspects included social perception and stigma, diagnostic reliability, causes of the illness, symptoms, treatment, suicide, media influence, and sources of information. They then constructed a questionnaire that included questions designed to address the aforementioned topics. The questions were prepared to be relevant, specific, straightforward, understandable to the general population, and free from biases in their wording. Questions that were redundant or did not meet these criteria were discarded. Finally, 13 definitive questions were selected to collect the required information. Additionally, some questions were included to gather sociodemographic data from participants (gender, age, place of residence, number of people living in the household, presence of children in the household, educational level, and current employment status). Finally, a Spanish sociological research company administered a total of 1,002 surveys between October and December 2022. The questionnaire was administered over the phone to Spanish individuals aged 18–70.

Statistical analyses were conducted using Stata. Data analysis was performed using the IBM SPSS Data Collection Base Professional program (v.6.0.1).

This study is compliant with the research ethics principles of the Declaration of Helsinki (seventh revision, 2013). This study did not involve patients, nor did it include any intervention.

3 Results

In Table 1, you can observe the distribution by sex, age, education level, and employment status of the participants, as well as the number of children they live with and the region of Spain they reside in.

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Table 1. Sociodemographic variables from our sample.

3.1 Responses from all participants

When asking participants about the first mental illness that comes to their mind, 47.50% responded mood disorders, while 32.34% indicated that severe and incurable illnesses like schizophrenia first came to their mind. When asked which statement they agreed with the most regarding mental illnesses, half of the participants (51%) agreed that they are subjective and difficult to diagnose, while only 3.19% responded that they are somewhat invented illnesses.

Regarding the causes of psychiatric illnesses, 78.84% responded that the origin of these illnesses is complex and influenced by multiple factors. 10% attributed it to social or genetic origins, while 7% believed the cause of psychiatric illnesses is completely unknown. In terms of individuals with mental illnesses, approximately 59% of participants strongly agreed or agreed that these individuals can lead a normalized life, while 15% held the opposite opinion.

Concerning the stigma surrounding people with mental illnesses, more than half of the sample (51.70%) strongly disagreed that a person with a mental illness should hide it. However, around 7% of respondents believed they should conceal their condition. Furthermore, 97% of participants considered that even today, the stigma surrounding mental illnesses influences seeking help and acts as an obstacle to seeking it.

Regarding treatment, 70% of participants believed that psychotropic medications are often useful and effective, and a slightly higher percentage believed that psychotherapy is usually helpful in most cases. On the contrary, around 20% of participants believed it is better not to take pharmacological treatment due to side effects, or that psychotherapeutic treatment is only worthwhile in specific cases because, despite being effective, it requires a significant time investment.

Regarding the topic of suicide and its portrayal in the media, more than half of the participants considered it important to discuss this topic appropriately. When queried about the appropriate response when someone discloses suicidal ideation or self-harming tendencies, a significant majority of participants advocated for a tactful approach, emphasizing the importance of delicately inquiring about the individual’s emotional wellbeing and gathering relevant information. A minority of participants held the belief that it is better preferable to refrain from asking or to employ humor in an attempt to alleviate the situation and subsequently divert the conversation to a different topic.

Finally, when surveying participants how much they agreed that the National Health Service provides good care for the diagnosis and treatment of mental illnesses, a larger portion of participants (40%) disagreed compared to those who considered the care to be good (26%). When asked about their opinion regarding the care provided by mental health professionals in the National Health Service, almost 70% considered it adequate and good, while 30% evaluated it as inadequate, limited, or insufficient (Table 2).

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Table 2. Responses from all participants.

3.2 Responses from participants stratified by age

When analyzing by age groups, we observed statistically significant differences among the different groups regarding their opinions on mental disorders. In all three age groups, the majority of participants in each group considered mental illnesses to be subjective and difficult to diagnose. However, it was in the youngest age group where we found the highest percentage of respondents who believed mental illnesses to be incurable.

When participants were asked about individuals with mental illnesses being able to lead a normalized life, we observed agreement among the majority of participants in all three age groups, but the percentage increased as the age of the respondents increased. Therefore, the oldest age group had the highest percentage (approximately 67%) of participants who strongly agreed that people with mental illnesses can lead a normalized life.

We also found statistically significant differences when asking participants about pharmacological treatment for mental illnesses. Although more than half of the participants in each age group believed that psychotropic medications are usually useful and effective, it was the 50–70 age group that had the most positive evaluation of psychotropic medications. When delving further into the treatment of mental illnesses, we observed that the vast majority of participants in each group (between 67 and 82%) perceived both psychological and pharmacological treatments as effective. However, once again, the older age group had a more positive assessment of both treatments.

Regarding the topic of discussing suicide in the media, we also observed statistically significant differences across age groups. The younger participants were more in favor of addressing suicide in the media. Finally, participants in the 35–49 age group were the most hesitant to ask about suicidal thoughts or self-harm tendencies in someone who exhibits them (Table 3).

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Table 3. Responses from patients stratified by age.

3.3 Responses from participants stratified by gender

When analyzing the results by gender, we found that women were more in agreement than men regarding the idea that individuals with a mental illness can lead a normalized life. Approximately 62% of women strongly agreed or agreed with this notion, while the percentage of men who agreed with this statement was lower at 55%. Secondly, we observed statistically significant differences between genders in terms of how to react when learning that someone has suicidal thoughts or self-harm tendencies. Finally, we found statistically significant differences in the perception of mental health professionals in the National Health Service. Men exhibited a more favorable evaluation of mental health professionals (Table 4).

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Table 4. Responses from participants stratified by gender.

3.4 Responses from participants stratified by educational level

When analyzing the results according to participants’ educational level, we found that those with higher levels of education more strongly believed that mental illnesses are subjective and difficult to diagnose compared to those with lower levels of education. Additionally, individuals with higher levels of education were more likely to respond that mental illnesses are common and easily treatable. On the other hand, participants with lower levels of education were three times more likely to consider these illnesses as somewhat invented compared to those with higher levels of education (Table 5).

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Table 5. Responses from participants stratified by educational level.

Regarding the origin of mental illnesses, almost twice as many participants with higher levels of education, compared to those with lower levels, believed that the cause of these illnesses is unknown. Conversely, twice as many participants with lower levels of education believed that these illnesses have a primarily social origin compared to those with higher levels of education. However, a higher percentage of participants with higher levels of education (79.22%) stated that the origin of mental illnesses is complex and influenced by multiple factors.

Lastly, participants with lower levels of education were less likely to believe that the media should discuss suicide appropriately. Three times as many participants in this group suggested that it is better to talk about this topic only when it concerns public figures, compared to those with higher levels of education.

4 Discussion

To our knowledge, this is the first study to address the beliefs and perceptions of people in Spain regarding mental disorders in the aftermath of the pandemic, which has marked a significant milestone in the overall understanding of mental health, including their causes, diagnosis, and treatment, as well as their attitudes toward suicidal and self-harm thoughts and how this matter should be displayed in media.

Results from this investigation show that participants’ knowledge about mental disorders has increased and their consideration toward people who suffer mental illness, and the treatment of mental disorders has become more positive. One major finding is that most of the participants attribute that the origin of mental disorders is complex and it derives from a combination of psychological, biological, and social factors, showing a more accurate conception of mental disorders than in past research conducted in Spain with Spanish medical students (Failde et al., 2014). In a previous study conducted with the general population in Spain, participants displayed less knowledge regarding the cause of mental disorders, where many participants attributed that people who suffer mental disorders have personal control over the cause of their condition (Crespo et al., 2008). In a different study, the vast majority of participants thought that the causes of schizophrenia and bipolar disorder were changes in brain biology, genetics or drug use, while only a minority took into consideration psychosocial factors such as stress, child trauma, or problems in birth or pregnancy (Ruiz et al., 2012).

A second major finding in our study is that more than half of the participants think that a person with a mental disorder can live a normalized life and that they should not hide that they suffer a mental disorder. This result shows that stigma regarding mental disorders has diminished. These results are optimistic as previous research have found high levels of mental health stigma in Spain. In a study conducted in 2020, Spain was the country with higher levels of Stigma, compared to Canada and Russia. In this study, Spanish students showed a higher rate of stereotypes and social distance intentions toward people who suffer mental disorders, where men showed higher levels of stigma than women (Gallego et al., 2020). In a more recent study with university students, 91% of the participants thought that mental illnesses interfere significantly, inhibiting normal life (Ruiz et al., 2022). Our results are in line with the results of a study conducted in 2022, where only a small percentage of the participants thought that people with mental disorders should be separated from the community or perceived them as dangerous or people that should be avoided (Ruiz et al., 2022). Our results shed light on a significant shift in societal attitudes toward individuals with mental disorders, showing a notable increase in the positive consideration and acceptance of people with mental disorders, accompanied by a growing desire to integrate them into the broader community. Unlike the past, where stigma and discrimination were higher, there is now a greater recognition and empathy of the challenges faced by individuals with mental disorders.

Several factors may have contributed to this change in the perception of people with mental disorders. Efforts to raise awareness about mental health, including campaigns, educational programs, and media representation directed to raise awareness about mental health have played a vital role in combating stigma. In the past years, several campaigns and initiatives have helped challenge stereotypes and normalize conversations about mental health (Evans-Lacko et al., 2014; Mehta et al., 2015). On the other hand, the COVID-19 pandemic has had a profound impact on the conversation about mental health (Javakhishvili et al., 2022). The mortality of those infected by the virus, the measures taken to contain the spread of the virus, such as lockdowns, social distancing and restrictions, and the economic instability caused by the decreases in economic activities, have brought a complex set of challenges that have magnified existing mental health issues and brought new ones to the forefront (Santomauro et al., 2021). As Covid-19 was a crisis that affected everyone in multiple ways, this may have compelled individuals to openly acknowledge and address their mental health struggles. The bravery of individuals recognizing and sharing their personal experiences with mental disorders may have prompted a collective recognition of the importance of mental well-being and provided powerful insights for other people who face mental illness. Additionally, advocacy movements led by individuals and organizations have effectively pushed for several policy changes, increased resources, and improved mental health services, ultimately reducing the associated stigma (Sampogna et al., 2017; Henderson et al., 2020). On the other hand, specifically in Spain, prominent figures and institutions have advocated for greater attention to mental well-being, which has effectively gathered the attention of the population. For instance, two of the most sold books in Spain in the last years were focused on self -help and mental health and were written by psychiatrist Marian Rojas Estapé. This shows that population is more interested in learning about mental health and addressing their personal struggles with self-help books.

Gaining knowledge about the causes of mental disorders helps dispel the myth that they are solely the result of personal weakness or character flaws. In a study conducted in France, schizophrenia was seen as a mental disorder caused majorly by biological and genetic factors and therefore required the help of psychiatrists and psychotropic medication. On the other side, depression was seen as a consequence of stress and was considered to have a better prognosis, where general practitioners, psychotherapy and social support were considered to be the most appropriate treatment (Angermeyer et al., 2013). Similar results were observed in a different study conducted within the general population in Germany, where the cause of depression was mostly attributed to experiencing psychological and social stress, while biological factors were most frequently considered to be the cause of schizophrenia. Nevertheless, participants most frequently reacted with a desire to help toward both people who suffer depression and schizophrenia, and they were both viewed as having a good prognosis with treatment (Angermeyer and Matschinger, 2003). Recognizing that mental disorders are complex conditions influenced by a combination of genetic, biological, environmental, and psychosocial factors encourages a shift from judgment to support, thereby reducing the stigma surrounding mental health.

Moreover, around 70% of the participants think of pharmacological and psychological treatment as useful and effective when addressing mental illness. Several past investigations with patients and the general population have shown that perceived pharmacological treatment for mental disorders as addictive and that rejection of medication was a way of not being labeled as mentally ill or as a weak person who is unable to deal with personal struggles (Comas and Alvarez, 2004; Khan et al., 2007; Prins et al., 2008; Malpass et al., 2009). More than a decade ago, a study showed that people in Spain thought that antidepressants caused dependency and therefore, rejected pharmacological treatment (Comas and Alvarez, 2004). A different study in Spain showed that psychological and pharmacological treatments were perceived as useful by the majority of participants and were considered to be effective. Nevertheless, a large number of participants agreed that only people who show symptoms require mental health treatment, and that psychological treatment lasts a lifetime, which is harmful for the patient (Ruiz et al., 2012). Our results show that consideration of pharmacological and psychological treatment has become more positive in the past years, with more people being aware and certain of their utility and efficacy (Watson and Beshai, 2021). Positive consideration of psychological and pharmacological treatment plays a pivotal role in promoting mental well-being and improving the quality of life for individuals with mental health struggles. By embracing a positive attitude toward these treatments, individuals are more likely to seek help without hesitation, reduce self-stigma, and overcome barriers to treatment, which result in an improved overall well-being and a higher likelihood of successful recovery for those who suffer mental illness.

With regards to suicide, our results show that people have accurate knowledge on how suicide should be addressed in an individual and collective manner. More than 80% of our participants answered that if someone shares suicidal or self-harm thoughts or concerns, the best way to handle it is asking kindly and gathering more information about that person’s mood. Only 3% thought that suicide is extremely rare in developed countries and only 4% thought that the best way to react if someone shares suicidal or self-harm concerns is to make jokes and change subject. In Spain, several suicide campaigns have been created and implemented to equip the population with knowledge and resources to handle personal suicidal or self-harm thoughts, as well as supporting those around them facing similar struggles. To name some of them, “Teléfono de la Esperanza” (Hope Helpline) is a helpline that offers emotional support and intervention for individuals in crisis. Their campaign encourages open conversations about suicide. Mass media has also played a crucial role in suicide prevention and management. For instance, last year, “Radio Televisión Espanola”” (RTVE, Spanish Radio and Television), one of the most important news media in Spain, broadcasted and promoted a campaign called “Me, too,” aimed to share the personal stories of famous figures in Spain who suffer mental struggles. In our study, around 60% of our participants agreed that suicide should be adequately addressed in media, which shows that our society is more open about these conversations and aware of the importance of having such spaces that contribute to gathering knowledge and resources to better manage suicide.

Furthermore, media coverage of suicide is important as suicide is a leading cause of premature death. The fact that people are aware that suicide is a topic that should be handled in an appropriate way by media is crucial as, if not doing so, several risks can arise (Guinovart et al., 2023). Firstly, sensationalizing suicide can lead to a phenomenon known as suicide contagion or the “copycat effect.” (Sudak and Sudak, 2005; VanderWeele et al., 2019). Inappropriate media coverage can also contribute to increase stigma surrounding mental health and suicide, perpetuating misconceptions, and decreasing discussions about prevention. On the other hand, silence may not be an effective way to handle suicide, as silence and avoidance can perpetuate stigma surrounding mental health and create barriers to help-seeking behavior (Barnet et al., 2006). Open and responsible communication can be beneficial. In addition, responsible reporting and communication guidelines have been developed to promote accurate, compassionate, and prevention-focused discussions about suicide in the media (World Health Organization & International Association for Suicide Prevention, 2017).

A limitation of our study is the absence of a preliminary testing phase for the questionnaire in a smaller sample before its administration to the study participants. While the questions were meticulously formulated by a committee of experts with extensive experience in mental health, the lack of a pilot test introduces an element of uncertainty regarding the clarity, interpretability, and potential ambiguity of certain items. A preliminary test would have allowed us to identify and rectify any ambiguities with the wording of questions, ensuring a more refined instrument for data collection. The omission of this step may have implications for the reliability and validity of the responses obtained, as participants’ interpretations of certain items could vary. Despite this limitation, we aimed to mitigate potential issues by having the expert committee complete the questionnaire, but we acknowledge that a dedicated pilot phase would have offered a more robust foundation for the study. Another noteworthy limitation pertains to the geographical distribution of our participants, with a predominant representation from Castilla y León, Extremadura, and Galicia. This regional concentration may limit the generalizability of our findings to the entire Spanish population, as regional variations in attitudes and perceptions toward mental health could impact the broader applicability of our results. Caution should be exercised when extrapolating our conclusions to a national level, and future research endeavors should strive for a more geographically diverse sample to enhance the external validity of the study. Finally, it is important to keep in mind that the present work may vary with respect to works carried out in the past in methodology and in the historical influences received.

In conclusion, our results are optimistic and somehow indicate that in recent years there has been a significant transformation in how Spanish society perceives mental disorders, leaving behind decades of discrimination, social exclusion, and inadequate care (Sajatovic et al., 2008; Aydemir and Akkaya, 2011; Suto et al., 2012; Hawke et al., 2013). The reduction of mental health stigma can bring numerous benefits. It may encourage individuals to seek help and support without fear of judgment or discrimination, facilitating early intervention and treatment (Coppens et al., 2013). It may also promote open conversations about mental health within families, communities, and workplaces, fostering a supportive environment that may more likely improve recovery. However, it is essential to continue promoting a better comprehension of mental disorders. Education and awareness campaigns should be expanded to reach broader audiences, targeting schools, workplaces, and communities. Media outlets should continue to portray mental health responsibly, avoiding stigmatizing language or sensationalism.

Data availability statement

The raw data supporting the conclusions of this article will be made available by the authors, without undue reservation.

Ethics statement

Written informed consent was obtained from the individual(s) for the publication of any potentially identifiable images or data included in this article.

Author contributions

AV: Writing – original draft, Writing – review & editing. RM-R: Conceptualization, Methodology, Writing – review & editing. LG-R: Conceptualization, Methodology, Writing – review & editing. MP-P: Conceptualization, Funding acquisition, Writing – review & editing. GL: Writing – review & editing. CD-V: Formal Analysis, Writing – review & editing. MA-M: Conceptualization, Methodology, Writing – review & editing.

Funding

The author(s) declare financial support was received for the research, authorship, and/or publication of this article. This research was funded by Viatris. The funder was not involved in the study design, collection, analysis, interpretation of data, the writing of this article, or the decision to submit it for publication.

Acknowledgments

We thank Viatris for their sponsorship and support of this project. No Viatris employee has been involved in data interpretation or manuscript writing.

Conflict of interest

The authors declare that the research was conducted in the absence of any commercial or financial relationships that could be construed as a potential conflict of interest.

Publisher’s note

All claims expressed in this article are solely those of the authors and do not necessarily represent those of their affiliated organizations, or those of the publisher, the editors and the reviewers. Any product that may be evaluated in this article, or claim that may be made by its manufacturer, is not guaranteed or endorsed by the publisher.

Footnotes

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